World Stroke Day

Today is World Stroke Day.

Twelve years ago I didn’t know there was a World Stroke Day.

Twelve years ago I didn’t know babies and children could have strokes.

Twelve years ago I didn’t know I would have a baby who survived a stroke.

And what a survivor she is.

So many people comment to me they had no idea Big Cutie has any issues when I tell them her story {if you’re new to Felt So Cute, you can read our Stroke Story here}.  And I want to shake their shoulders, do a happy dance, and drop to my knees in prayers of gratitude and scream, “I KNOW, RIGHT?!”

Except that misses one of the most magnificent things about our stroke survivor.

And that’s how hard she works, each and every day to make it look like nothing ever happened!  And she’s so amazing at it, and so incredibly tenacious, that all of us in her world can forget sometimes that she’s working her tail off.

Here’s a little example for you to get your brain working ~ imagine tying a weight to your right arm and right leg.  Now hop in the pool.  Start swimming a lap, please.  How ya’ doing?  Tired yet?  Swimming crooked?  Are you lifting both arms out of the water equally?  Oh yeah, are you remembering to kick evenly with both legs?  Did you finish a few laps?  Fantastic!  Now jump in and do it all over again!

That’s how a Therapist once described daily life for Big Cutie to me.

I remember watching her in Physical Therapy years ago, working hard to walk heel-toe across a piece of tape on the floor.  Her brow would be furrowed, her right hand would be fisted up tight, and she would work that right leg so hard and so patiently to place it in front of the left one.  And more times than not, she’d fall off the marked line.  And without adult intervention, she’d go back to the start and begin again.  In her mind, it wasn’t going to be a victory until she could do it from the beginning to the end, perfectly, her way.  She’s always been like this.  No short cuts, no easy way out.

It’s a blessing and a curse.

As a parent, while I would never wish a stroke for my child, I believe with all my heart, that these challenges will give her strength in so many ways as she grows up, that the blessings will outweigh the curses and the smiles will outshine the tears.

And the victories will keep coming.

One foot in front of the other, slowly but surely.

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5 Responses to World Stroke Day

  1. Cute Grandma says:

    So very proud if Big cutie!!! She truly is an amazing!!!! And so very special!!!

  2. Aunt Pam says:

    Beautifully written! She’s amazing and a great inspiration. Love Big Cutie!

  3. Steph says:

    I enjoy reading your blog, all about your cuties, your crafts and all about Japan. While we have never been faced with something so challenging, I will be thinking of you and all others on World Stroke Day.

  4. Cute Grammy says:

    She is awesome and an inspiration to us all as are her parents who every day make sure she can be who she is. Love Ammy & Poppy

  5. gena says:

    <3 <3 <3 God Bless her and all of our kids who have to work that hard everyday just to BE!

    gena

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